On February 29, 2008 my 21 month old son, Daniel, was diagnosed with Mixed Lineage Leukemia(MLL)- A form of Acute Lymphoblastic Leukemia(ALL). This form of Leukemia is harder to treat than ALL and puts him in a higher risk of treatment failure.
He was diagnosed and treated initially at Stony Brook University Medical Center (Long Island, New York). After hearing what his prognosis was we immediately transferred his treatment to Memorial Sloan Kettering in Manhattan.
I have been informed that as of today my insurance is classifying this treatment as “out of network” and will only pay 70% of “usual and customary” fees. Which means that whatever Sloan charges above “usual and customary” PLUS 30% of “usual and customary” is my financial responsibility.
In other words-Help!
I would like to get whoever would like to volunteer to put on a martial arts demo to help defray the costs of my son’s treatment. It is my hope that we raise too much money from our efforts and help others who are my position.
The website with details on my son is: http://www.caringbridge.org/visit/danielcox
Thanks Everyone, and if anyone has any ideas such as venue or anything else please PM me.
Have you tried fighting your insurance company? I think it is a bit late in the game for them to drop that on you. They should have informed you of that from the outset. If Sloan Kettering is not in the network, how are they going to get paid in the first place. That confuses me. You need more people on your side advocating for you in order to get the insurance company to do the right thing. Roll up your sleeves and kick butt. Use your lawyers, politicians, media, shoot, anybody who would like to look good standing up for you. And if all should fail, the insurance company will have a black eye for their lack of professionalism, compassion, sensitivity, and goodwill.
Were you given assurances that the insurance company would cover everything? By whom and when? Here is where you need to start?
[QUOTE=TenTigers;849771]We will do a Lion Dance and Gung-Fu demo with you, Chris. Just say when and where.[/QUOTE]
Thanks!!!
I’m still in the early stages of planning this and have never done anything like this before. I really don’t know where to start- besides here.
Have you tried fighting your insurance company? I think it is a bit late in the game for them to drop that on you. They should have informed you of that from the outset. If Sloan Kettering is not in the network, how are they going to get paid in the first place. That confuses me. You need more people on your side advocating for you in order to get the insurance company to do the right thing. Roll up your sleeves and kick butt. Use your lawyers, politicians, media, shoot, anybody who would like to look good standing up for you. And if all should fail, the insurance company will have a black eye for their lack of professionalism, compassion, sensitivity, and goodwill.
Were you given assurances that the insurance company would cover everything? By whom and when? Here is where you need to start?
mickey[/QUOTE]
We’re digging in for a fight with them, but profit is profit and is driven by greed.
“In Network” means that that particular Dr’s fees are covered.
The insurance co.'s view is that there are other Dr’s “in network” that treat this. None of them have the experience that Sloan’s does. We want our son to have the best chance possible in fighting this.
[QUOTE=lkfmdc;849782]I am an ALL survivor who was treated at memorial sloan kettering… back when I was a kid, they also had bad prognossis (sp?) but I became the exception
I’d set up a pay pal and ask for donations… honestly if everyone gave you just $10… that is the wonder of the internet.
I will pray for your son, please keep us informed[/QUOTE]
Knowing that gives me more hope!
The paypal thing sounds cool. I have an account, how would I set that up?
Oh my god chris, that’s terrible. If I’m home when this is going on, count on me to do whatever I can. Also, maybe try getting in touch with leukemia/lymphoma society, they might have some help for you. Stay strong si-hing and my prayers and best wishes go out to you, your wife and your son
[QUOTE=Mook Jong;849784]Oh my god chris, that’s terrible. If I’m home when this is going on, count on me to do whatever I can. Also, maybe try getting in touch with leukemia/lymphoma society, they might have some help for you. Stay strong si-hing and my prayers and best wishes go out to you, your wife and your son[/QUOTE]
Thanks, Bro!
We’re in touch with Leukemia/Lymphoma society and I think they’re gonna help out with travel expenses.
Hope you don’t mind, but i set up a facebook group, see if i can get some more people to see it. Also, i’ll see if I can do a self-defence seminar for donations up here. I’m pulling for the little guy.
[QUOTE=Mook Jong;849790]Hope you don’t mind, but i set up a facebook group, see if i can get some more people to see it. Also, i’ll see if I can do a self-defence seminar for donations up here. I’m pulling for the little guy.[/QUOTE]
Rik’s idea of a Lion Dance begets a bigger one-why not put on a Friendship seminar-get some volunteer people to teach in hour-2 hour blocks and whatever money raised goes to your son and Insurance bills-- I’ll donate time to teach a block for you
[QUOTE=drleungjohn;849797]Rik’s idea of a Lion Dance begets a bigger one-why not put on a Friendship seminar-get some volunteer people to teach in hour-2 hour blocks and whatever money raised goes to your son and Insurance bills-- I’ll donate time to teach a block for you[/QUOTE]
That sounds great, that would be amazing!
I’m still in the Very early stages of planning this, so if you have a location or locations in mind let me know.